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Cerebral palsy (CP) Male, 3 years old, April 2019

Summary

DiagnosisSexAgeNationality
Cerebral PalsyMale3American (USA)
Admission dateDischarge date
2019-03-312019-04-22

Condition On Admission

In late 2016, the patient was admitted to the hospital with a severe response to respiratory syncytial virus (RSV). After 4 days he was medevaced by air to a major pediatric intensive care unit (PICU) for a 34 day stay, during which time he lost the ability to nurse a bottle. He was sent to a step-down hospital for 12 days and fitted with a Mik-Key button (G-tube) to have food directly pumped to his stomach.
When he returned home he just lay in his bed like a rag doll for several months. He began making some progress during the early spring of 2017. He continues to receive his food via a pump to his stomach to this day and will accept small amounts of food by mouth some days. He is becoming more verbal and is aware of his physical surroundings and people. He enjoys playing with toys that make musical sounds and have lights.

Treatment Schedule

NumberDateCell TypeDelivery MethodSide Effects
12019-04-01UCSBCIVNone
22019-04-04UCSBCIVNone
32019-04-04UCSBCLPNone
42019-04-08UCSBCLPNone
52019-04-11UCSBCLPNone
62019-04-16UCSBCIVNone
72019-04-16UCSBCLPNone
82019-04-19UCSBCLPNone

Condition 1 month after treatment

His right arm remains tight but he has shown improvement in his left arm. His hips still remain tight but have shown slight improvement. He is able to propel his gait trainer more quickly and with a slightly larger step pattern but has not mastered turning.

Condition 3 months after treatment

The walking information was evaluated in a gait trainer. Walking with manual assistance has improved slightly. He has shown significant improvement in bilateral hand use, especially playing ball. The area of greatest gains has been in expressive language.

He is able to participate more in reaching out to catch himself in sitting, especially with his left arm. He is helping to feed himself more. He can use both hands to pick up and throw small ball with another person.

Condition 12 months after treatment

Please see an excerpt from the patient’s 12 month assessment below:

Symptom

Parents’ Assessment of Improvement

Symptom: Appetite

Significant improvement

Symptom: Balance

Small improvement

Symptom: Bladder control

No improvement

Symptom: Crawling

Small improvement

Symptom: Drooling

Not applicable

Symptom: Head control

Moderate improvement

Symptom: Involuntary movements

Moderate improvement

Symptom: Learning disability

Moderate improvement

Symptom: Limb muscle strength

Small improvement

Symptom: Mood disorder

Not applicable

Symptom: Range of movement

Small improvement

Symptom: Spasticity

Small improvement

Symptom: Speech (babbling for infants)

Significant improvement

Symptom: Standing up

Small improvement

Symptom: Swallowing

Moderate improvement

Symptom: Trunk muscle strength

Small improvement

Symptom: Walking

Moderate improvement