Justin has a rare genetic disorder called Alexander Disease. Doctors have given his mother a grim prognosis all his life–telling her he would be dead by age 4, 8 and 10. He’s still living.
Alexander’s Disease is a leukodystrophy affecting the myelin sheath surrounding nerve cells. It is a neurodegenerative disorder typically fatal and has no cure.
His mother, Sary, wants to provide him with the best quality of life possible in spite of the disease. Adult stem cell therapy offers that chance.